Microphthalmia – Helpful Resources for Parents

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October 19, 2015 at 1:58 pm #850
apm
Keymaster
Below is a list of helpful websites and resources for parents of children with microphthalmia, anophthalmia, or retinoblastoma. We encourage you to respond with your own useful links and resources!
December 4, 2015 at 3:06 pm #866

Jenna Meeks
Thank you so much for sharing these! My baby girl was very recently diagnosed with microphthalmia and these resources have been extremely helpful.
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Patient Testimonials

My eye injury happened in 1966 at the age of 4 years old, a lifetime ago- over half a century. While many memories of childhood are faint and faded; I have distinct and terrifying memories of my experience getting my first artificial eye. A child sitting in that big chair, the smells, the noises. I outgrew that artificial eye and had to go through that experience yet again at the age of 12. I remember the multiple times returning to the office located in the back of the optometrist office. The days upon days- the grinding noise of the machine grinding the eye to fit. That eye- poor fitting and faded I kept for the next 44 years. I was petrified and became that 4 year old little boy every time I have visited the eye doctor. Every time. That little boy in the big chair, a lifetime ago, with no knowledge of what was happening. Technology certainly has changed in 52 years, but the thing that has helped me to relax in this environment is the simple conversation and communication that has taken place throughout the process. It in many ways has made me feel like a big boy in a little chair. I’m not sure why, but I feel like a half century of fear and anxiety has been lifted.
-Anonymous,
"Friendly atmosphere. We were greeted at the door, they remembered our name and were very personal and helpful. They offered us coffee, tea, and cold water. I highly recommend them"
James Chavis ,
This family has been the best. Way friendly people. You can feel the love when you walk in the office.
Bennie Hayes, Henderson, NC ,
I have been bringing my dad here for 20 plus years. This is his third eye. Wouldn’t take him anywhere else! I observed all of the staff with a 2 ½ year old patient. Everyone was great with that little boy who must have been terrified. Carolina Eye Prosthetics was fantastic to the 2 year old and my 83 year old dad. Definitely the place to go for anyone needing their services.
Family of Charles Brooks,
The office has a nice waiting area - comfortable place to be.
Jasmin Patterson,